Things are frustrating on the concussion front. It’s been almost two years since the original injury, but my progress has been like the stock market . . . when it’s plunging.
I have made gains in my ability to understand myself and what my triggers are. That’s helpful at least. But it’s complicated stuff, monitoring everything I do, trying to do more without setting myself back.
One thing has given me pause. Three doctors specializing in concussions have now told me that my case is unusual. They have never seen another patient who experiences concussion setbacks as I do. So I’m an unusual case.
But how unusual am I really? I know of two other people who seem to have similar issues. One I know personally, and the other I found by doing a Google search, landing on her website about post-concussion syndrome. Both of these people have described experiencing concussion setbacks. I also found that functional neurological disorder web page, which I have mentioned previously on this blog, that explains that sometimes the functioning of the nervous system gets screwed up, even if the actual tissue is fine or heals.
So I had a blow to the head that set something out of whack, and now my brain is trying to protect me by sending out signals that it thinks are valid, but are actually not.
How do you fix something like that? The two people I know of fixed it by years of trial and error. Like 5 to 10 years of trial and error.
Ugh. Is there a shortcut?
I’m reaching out to you today to ask you what secrets you might have. Please share with me any and all ideas, no matter how big or small, serious or silly. One of them might be a clue or the answer. Here are therapies I have tried or am thinking about trying:
- Chiropractic treatment
- Hyperbaric oxygen therapy
- Food allergy testing
- Life coaching
- Vestibular-ocular physical therapy
- Neck and head massage
- Positive thinking
- Craniosacral therapy
What other ideas do you have?